7 Days of Action

My Life My Choice

A brilliant and powerful response from the My Life My Choice Champions to Under Lock and Key and the 7 Days of Action Campaign. 

Our response to The state of care in mental health services

The 7 Days of Action response to CQC report on Mental Health Services: "Our campaign is concerned on the number of people with learning disabilities trapped in mental health in-patient services. Recent evidence has revealed that as more services pass over into the hands of private providers, people with learning disabilities are being detained in their units for longer. A 10 year detention is not uncommon. Regrettably we see this continuing as the profit margins for detaining learning disabled people can be huge. Furthermore, we are concerned that although these places market themselves as assessment and treatment units, the treatment consists primarily of over medication, restraint and seclusion. The fundamental position of 7 Days of Action is that in patient units are completely the wrong environment for a person with a learning disability and will only exacerbate the person's distress.

Three Preventable Deaths ...?

Families often struggle to get healthcare professionals to take their concerns seriously and the news about Ian Shaw's diagnosis illlustrates how serious the consequences of that indifference can be. But it isn't just families that get ignored. I was sent this by the manager of residential home a little while ago and in the week when the government has yet again claimed that it is improving access to healthcare for people with learning disabilities now would seem to be an approriate time to publish it.

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A Trade in People

June the 26th marked the beginning of our third 7daysofaction "A Trade in People". The report "A Trade in People" and the weeks campaign was put together in partnership with Lancaster University and elements of it were featured on BBC Breakfast. Through the course of the week, we looked at the economics of the inpatient system and the growing power and influence of the independent sector. Overall it was about the impact of what is effectively a trade in people, on individuals and families and the profits that are available to some of the businesses that are operating in the sector.

Go to the campaign pages 

 

About 7 Days of Action

Between 2500 and 3000 people with autism and learning difficulties are currently detained in some form of in-patient setting and over 30,000 are at risk of being placed in one. 7 Days of Action is:

  • a family led campaign to get people with autism and learning difficulties out of in-patient settings and back into their communities;
  • to keep them in their communities once they are home 
  • and to stop them from having to leave their communities in the first place

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Our Campaigns

In the Spring of 2016 we launched the campaign #7daysofaction the campaign that gave this group its name. It was the first of what will be a series of campaigns to highlight the stories of people who are caught in the care system often far away from their families, their communities and the people who love them. Our campaigns are about individuals and the system - people who are deprived of their liberty because of a lack of support and the arbitrariness of a system that fails them. A system that fails to meet its own aspirations and too often hides the stories of our loved ones in-order to protect its own shortcomings.

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The Things We Know

Once our children become adults, most of the important decisions in their lives will be made by or over seen by experts. Most of these experts will have only met our sons and daughter for short periods of time in most probably in a specific and limited environment. This part of the site is dedicated to the expertise of the people who know a person best. They may be parent's or family members or long term personal assistants. What they have in common is that there expertise is invaluable to any decision making process ...and it is invariably ignored.

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 Dispatches: Under Lock and Key

On Wednesday 1/03/2017 almost six years after Winterbourne View, Channel 4 showed a documentary on the care of vulnerable young people in in-patient hospital provision. The programme highlighted the use of restraint techniques that have been banned, over medication and the lack of progress made since 2011 by Transforming Care. We asked people to comment on the programme.

 

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You Are My Child

This song was written by Julie Newcombe and performed by Caroline Kick and we think its very good.

This is a song to describe the anguish and fear, yet also the love and determination, of those parents who have sons and daughters with Autism and Learning Difficulties who are locked away in psychiatric hospitals. Many have been in hospital for years and are damaged by the experience. Some do not come home at all.

Listen on Soundcloud

7 Days of Action receives no funding but is supported in its campaigns by the following organisations 

Respond 

Respond exists to lessen the effect of trauma and abuse of people with learning disabilities and Autism, their families and supporters

Bringing Us Together

Bringing Us Together is led by parents of children and young people with a variety of SEN and Disabilities (SEND).

You Know

A one-stop place where everyone knows to go to find the right information about social care, health and housing.

If you would like to donate to Respond's work in supporting people with learning disabilities and their families